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| Deer tick, a vector of Lyme disease |
by guest writer Kimberlee Smith
You will seize up with fear when your children dive into
piles of leaves in autumn.
You will holler at them to stop that right away, because
they know better. They know about the ticks. They are taught about Lyme disease
in school and at home. They live at
ground zero, one of the densest areas of Lyme disease documentation anywhere.
You will bark at them again for sitting on the century-old
low stone wall that you know makes a perfect launching pad for the pernicious
arachnid, no larger than the size of a period at the end of a sentence in
newsprint. The nearly invisible pest. Nearly, until you undress to soak in the
bath and feel an angry, hot burn on your lower hip. You touch it; it feels like a third degree
burn. It looks like there is a ruby red
grapefruit fused to your hip.
You scratch and scratch until it turns purple and furious
and now has raging nail marks on the grapefruit skin that is your own
body. You slap at it, the stinging of
your flat palm eases some of the searing itch.
You don’t have time to tell anyone. You race to the town walk-in clinic, a triage
center. The elfin doctor with the wide grin might be a woman or a man, but you
do not care. You suggest to the doctor
the super-welt might be a spider bite.
The doctor’s frozen smile stays pasted to the doctor’s face.
The doctor suggests
it is a poison ivy rash. You are highly
allergic to poison ivy and know this is not it.
Because you know it well, having taken shots to desensitize your system
to the ivy oils since you were a teenager.
Since you went to the bathroom in the woods because you were drinking
beer with your friends and wiped yourself with poison ivy. You did not get a tick bite up your ass, but
you did get a severe allergic reaction to poison ivy in every orifice—every
one--and a trip to the hospital and weeks of antibiotics.
So you know it is not that. The doctor prescribes a five-day
pack of Zithromax and Prednisone, which you do not, cannot, take, because it
makes you crazy angry like a television wrestler with roid rage.
You are staple-gunning plastic sheeting to the frames of the
screened in porch. It is several months
since the grapefruit has left your hip. But you are infected. As with most
diseases, the symptoms are the alarm bells, and you are at a well-advanced
stage of illness that takes aggressive treatment. But you do not know this, not
yet.
Your muscles ache,
your joints feel as if all the fluid has drained out and bone rubs against
bone, that after 42 years, you might well now begin suffering from
migraine. That you might have the
flu. Mononucleosis? Lupus?
Epstein-Barr? That you should put down
the staple gun and have a hot tea. You do, and you sleep. And it hurts.
You call the internist from Yale, referred by one of your
many friends who have suffered from Lyme disease. You drive to see him. He is a specialist. He runs all the tests,
vial after vial. He does something called a Western Blot test. Across the board for autoimmune
illnesses. You think maybe it is AIDS.
That you are dying. But it is not, thankfully, and you are not.
The wonderful doctor who is young and handsome and most
definitely male puts you on a month of antibiotics and declares without waiting
for the test results, that you most probably have Lyme disease. You want to hug him, you want to cry.
You spend the next two weeks with your children tending to
themselves and your home is not unlike a scenario from Lord of the Flies. You wave from the kitchen window as your
children get on the school bus. You go
back to sleep and wake when they come home.
The dogs haven’t been fed, but they shit on the floor anyway because you
did not have the energy to let them out.
Your kids eat instant macaroni and cheese and microwave hotdogs. You assure them you will be fine, but still
everyone is scared, and now and then you all cry.
Two weeks later, your mouth is doughy and bleeding from
thrush from the antibiotics. But you
wake up. Feeling better, but that feeling better is relative, because you felt
like you were run over by a Boeing 777. Slowly.
The test comes back inconclusive. But it often does, the wonder doctor assures
you. You have Lyme disease, but we will
get you better. We will, together. You
love this doctor almost as much as you loved your obstetrician who brought your
babies into the world.
You are better. Ish.
But there are cases of relapse.
You are afraid of grass. Bushes. Trees. Shady, verdant spots
at which you used to daydream and count clouds, carefree.
You are afraid of outside your own back door. You hate grass
and springtime and the great outdoors.
You are furious with it for being a breeding ground for the deer tick,
this arachnid that spreads Lyme disease to you.
Your dogs will whimper and whine and dig deep holes in your
yard because they are bored. You will cuss at them; maybe give them too many
treats. They will get thick in the
middle and become despondent. They miss the hikes in the woods, they miss you
kicking the ball in the meadow to them.
You will make sure, if you ever again get up the nerve to
hike through the woods right out your back door, you will wear long socks and
tuck your pants in to them. And high boots laced so tight your feet go numb.
And long sleeves with rubber bands around your wrists so those sneaky little
bastards cannot invade you again. A hat.
Gloves. Head-to-toe DEET
spray. But chances are you will never
hike again.
The dogs are immunized against Lyme. You topically apply a liquid that kills the
tick if it latches on your dogs. For you? There is nothing. Nothing prophylactic, no preventative. Only treatment once you are infected. You will always feel afraid it will happen
again, you are always going to be vulnerable.
You have so many friends who have contracted Lyme, you know more people
who have than who haven’t, living here in rural Connecticut. You think you should move to the city.
Instead you worry, you inspect your children, and they, you,
looking for that tiny dot that could render you paralyzed and neurologically
impaired—potentially irreversibly. You are paranoid, and you should be. Lyme
disease is sneaky, and relentless. It rides on the backs of deer, it travels on
mice, it lives on dogs. Mainly, it lives
on blood. Yours, because you know it was
there, firsthand.